Episode 138: Learning To Live While Living With Lyme

Episode 138 November 15, 2023 00:41:03
Episode 138: Learning To Live While Living With Lyme
Integrative Lyme Solutions with Dr. Karlfeldt
Episode 138: Learning To Live While Living With Lyme

Nov 15 2023 | 00:41:03

/

Show Notes

Join us today as we welcome Jamie Bennett, a Lyme patient turned health advocate. Jamie shares her personal experience dealing with Lyme disease and her family's journey towards wellness. She discusses her initial challenges, including symptoms of fatigue, inflammation, cardiovascular problems, and seizures. Jamie also emphasizes the importance of mindset and diet for healing, how she got her life back post-treatment, and the process of starting her career in supporting others. The discussion also covers various aspects of Lyme treatment, including antibiotics, essential oils, and managing co-infections.

Jamie's best selling book “There’s A Deer At The Door And A Cow In The Mudroom: Learning To Live While Living With Lyme

https://www.amazon.com/dp/B0B92RFZTG/

Can also get FREE, just pay shipping here: https://www.freebook.functionalwellnesscollective.com/free-lyme-book

Website: https://www.functionalwellnesscollective.com

Programs & Memberships: https://www.functionalwellnesscollective.com/programs

View Full Transcript

Episode Transcript

[00:00:01] Speaker A: Welcome back to Integrative Lime Solutions with Dr. Carl Feld. [00:00:05] Speaker B: I am so excited about the show that we have ahead of us. We have some phenomenal information that could save lives. I am Dr. Michael Carlfelt, and with. [00:00:16] Speaker A: Me, I have my co host, Tanya Hobo. [00:00:19] Speaker B: You're going to need to tune in to what's going on today. The information is unpacked, so, yeah, don't step away. [00:00:29] Speaker C: So excited. Let's go ahead and get this started. Welcome to Integrative Lyme Solutions with Dr. Carl felt. And today we're here with Jamie, and she's going to talk about her journey as well as her family's journey a little bit. So she has a lot of Lyme going on in her world. She also runs the functional wellness collective now and is the author of what I think is an incredible title to a book. There's a deer at the door and a cow in the mud room. So welcome, Jamie. We're really excited to have you and share your journey with us. [00:01:09] Speaker D: Thank you. Thank you for having me. I'm glad to be here. [00:01:12] Speaker B: Well, that title just intrigued. Mean, dear, dear mean. The cow in the mud room. Yes. Tell me about that one. [00:01:22] Speaker D: I always tell people I can't make this stuff up. So when my girls were and my husband, we were dating, it. We weren't married yet. We were engaged. And he read a journal article that said that little girls who get into horses stay out of drugs, alcohol, and boys. And that's all it took. The subdivision house that he was living in, that we were moving into, he was like, is not good enough. We're going to buy a farm. We're going to get him horses. They're going to be good girls. And I didn't know I was sick at the time or that one of my daughters at the time already had Lyme as well. And so we bought a farm, and we had no idea what we were doing. We came from a subdivision, and over the course of the 15 years that we were there, we really did have a deer that was rehabilitated and would come up to the glass front door and she'd bang her nose on the door when she went. A potato chip I would spray with essential oils in order to keep the ticks away. And then we had a calf that was born prematurely, very tiny, and we brought it into the mud room to try to save it. So we really did have a cow at one point in our mud room. So I always joked my mother was the force behind me writing my book, and the family would always say, if you ever write a book, this is going to be the title. And so that's what it was. [00:02:43] Speaker C: I love it. Yeah. That's awesome. [00:02:45] Speaker B: So cool. [00:02:48] Speaker C: So where does your journey all begin? How far back do we have to go to kind of recapture it for me? [00:02:55] Speaker D: Easy high school. So I had all of the different symptoms that everybody ignores until you're smacked in the face and you have to address your health. So I had cardiovascular issues, I had inflammation issues. I had histamine issues. Everything started early, but I was the typical going to high school, I wanted to be a doctor. So I was working jobs at night to save money for medical school and worried about my grades and just ignored it all. And, of course, I go to college. And what do you do? You drink. So I didn't care about my symptoms. [00:03:32] Speaker B: So it wasn't until you didn't grow up on a farm then, because then you would have been drinking. [00:03:38] Speaker C: Oh, no, right? There's his nice little joke. Yeah. If your parents would have raised you on a farm, you would be a good girl and not drink. I love it. [00:03:48] Speaker D: I didn't catch that. I was like, I'm not sure, but no, definitely not. And I ignored all of my symptoms. So things did not really start to peak for me, believe it or not, until I was pregnant with my third child. So I'd gone through my second one, was sick from the very beginning, and nobody could figure it out. She had tons of surgeries. I like to tell her she was bad, and she'll admit it. She'll be like, this doesn't do me justice, Mom. But she was bad and had lots of behavioral issues. But when I was pregnant with my third child, everything just fell apart. Like, I couldn't stay awake. I couldn't climb the stairs. The doctor would say, you're just getting fat. You're just pregnant. It's okay. Go take a nap. And they'd ride me off, and I was like, this is my Third. I know something's wrong. And so I naturally assumed that's probably when I got it. But when we start to kind of peel the layers back, we realized that I had had things that I was just ignoring for so long. In my senior year of high school, I ended up in some inflammatory episode where my said rate was just off the charts. I couldn't move my body. They had to pump me through prednisone to get me to move. They tested my blood, and, like, I was positive for Ra, positive for lupus, positive for everything. I came back as hypothyroid and they were like, we don't know what's going on. Let's give her some steroids and see what happens. And they did, and everything leveled out. And so now, looking back, I'm like, all right, well, maybe that's when this all started, because my second child was sick enough that they know she had to have gotten in utero, and it's not a guarantee they're going to get it right. So I think my first one got lucky. Or she just had a really good immune system and kind of kept it at bay for a long time because she was in high school before we finally tested her and she started having symptoms and we realized she had it. And so she may have got it on the farm, she may not have gotten it from me, but definitely my second. And then my son got it from me. For sure. He had lots of issues. [00:05:58] Speaker B: In this journey. Then obviously, you're trying to figure out what's going on. It's always that journey, what do I need to do? How can I fix this? I'm mom, I got three kids. I got to be functional. So how did you kind of respond to not being able to move? [00:06:18] Speaker A: Pretty much it was hard. [00:06:21] Speaker D: It really was. First thing I did, I mean, I had to quit my career, and of course, I thought I was going to go back. I was a detective, so total adrenaline junkie. Loving the job, even going into health was a huge shift for me, but I wanted to focus on them. So before we even knew, we had Lyme and they were sick, and I was sick. I was not sleeping. I was doing the thing where you put the kids to bed and then you spend all night researcHing, trying to figure out what's wrong with your kids. And we were driving to different states and we were going to pediatric specialists, and of course, they were diagnosed with everything from autism to bipolar to mood disorders to learning disabilities. So my focus was them. It was my husband who kept going, do you see yourself? Do you see how sick you're getting? And I brought them home and made them do home school. And finally they had to go back because my mom, my husband had an intervention and made me put them back in school because I was having to nap. So I wasn't even getting to do schoolwork with them because I'd get so tired that doing a lot of wash just put me in the bed. So they were my primary focus for a long time when I really got sick. And of course, I did years of oral antibiotics, and it wasn't working. By that point, my gut was tore up. They finally were like, we might as well just put these in the toilet. You're not absorbing them. So I did three years of IV antibiotics. [00:07:57] Speaker A: That was hard. [00:08:00] Speaker B: People already started think that you're dealing. [00:08:02] Speaker A: With Lyme at this point. [00:08:04] Speaker B: Yeah, okay. [00:08:05] Speaker D: That's the story. I should probably share that one. I'm jumping ahead on you, but, yeah, when I was sick, they did everything. They did muscle biopsies. They had to go in, and I had to have heart procedures. So I was flown to the Mayo Clinic to try to figure out what's wrong with me. And if they found something, they were like, oh, that's a smoking gun. They'd stop looking for something else. So they did. They found the fact that I had an extra accessory pathway on my heart. So they went and fixed, and they were like, surely that's all your problems. No, it wasn't. It wasn't my problem. Or you've got all this inflammation and muscle death in your muscle. Let's give you some medicine for that. Surely that's your problem. It's not. So I was diagnosed with everything. I started having tremors. I started having seizures. We went through the whole thing early on. Had Parkinson's and lupus and muscle disease, and they finally said, we think you have ALS. And so that's where I was. And I was dealing with the fact that I was told at that point my daughter had a mood disorder. I was to sleep with one eye open, and she had Asperger's and learning disabilities. And my son was two points from retarded, and I should put him in a home. And my husband, who was on the SWAT team in law enforcement, they were doing some training in the woods, and he got Rocky Mountain spotted fever, completely unrelated to us, but that's acute. So that kind of shut him down. And everybody paid attention. They tested him, came back, they gave him medicine. Fine. But I'd been doing so much research in my kids. I'm like, you know, ticks that have other things. Birds of a feather flock together. We should really see a land literate doctor and see if you have something else. And we got in. It took a while, but we got into Naya in DC, and as she's talking to him, say, no, I don't have that. And then he'd look at me and go, but you got that, don't you, babe? And she'd ask him another question. He'd go, I don't have that at all. My wife has that. And after he did that, like, five or six times, she finally was like, I know this appointment is not about you, but your wife. Can we talk about her for just a minute? And she asked to test me. And of course I came back and tested positive. And so then I said, will you test my children? So I went from thinking I had ALS, and we were going to have to get me a wheelchair to this was now Lyme, which at that point, I was excited. I thought, okay, this is treatable. I have an answer to something, which not so much, but that kind of started the journey of, we knew what we had at that point, and then that's when oral antibiotics came in. My son responded very well to them, but he was a baby, and I had done all of the diets. He wasn't getting dairy, wasn't getting sugar, wasn't getting gluten. So his gut wasn't quite as bad as mine, and he had no MTHFR defect. And I really think that's a huge component when people don't get better. So I didn't bless him with that. I blessed both of my daughters for the defect. So he did well, he did antibiotics, we did herbals, we even did essential oils for a while, and he's great. My daughter continued to relapse. She has double defect MTHFR. Her gut was tore up. So after it wasn't working for me, they put me on IVs, and then eventually we had to put her on IV to get rid of it. That was the big thing. The doctor kept saying, you need to see more blue skies. Like, I'd want to take my pick line out because it's very expensive, too. We were selling anything we could to keep that thing in my veins. I'd have them take it out, and then immediately I'd get so sick again. But then I'd go for a while, and then I'd be like, I lost my benchmark. Do I feel like crap because of the Lyme or because of the side effects of the medicine? Do we take it out again? So I went through four of them, some of them clotted. I have clotting disorders. But my daughter did a stent where she did about six months, also on IVs, and it was the typical thing, like, your pancreas isn't working, your gallbladder stops working, your gut's a mess. And so that was the big roadback. You can have them put all these bombs in your gut, right? Because all they're focused on is getting rid of the bad guy. I do think there's a time and a place, don't get me wrong, I'm so thankful that we have that, but it destroys your gut. And till this day, we're still working on it. My daughter's got gastroparesis, and over the course of having Lyme, I developed a histamine tolerance that turned into mass cell activation, which I promise this is just a hot flash because I'm talking. It's not histamine. I think it's perimenopause, actually. But I even got Kuna syndrome, so I do have coronary artery spasms if my histamines degrade too quickly. So I can't even have any kind of narcotics at all. I joke all the time. I'm like, if I could be a drug seeker, there are days I would be, because vine sucks, but I can if I wanted to, even to have a fusion for my cervical instabIlity. I was left out, just nothing because I couldn't take anything. They had to give me a morphine patch to get me through the surgery and the anesthetic, and, I'm sorry, nitroglycerin by IV, too. So it's been a long road, but we have come so far. I think that's my big story that my mom wanted me to share, is just, you can come down from such a dark place and be in the trenches, and then there is a way to thrive again. You may not be that same person. I'm not the same person I was before at all, but I'm a new person, right? A person that I'm happy with because I'm a wiser, and I don't want to be that person again that drank and did stupid stuff. But for anybody that says that you go back to living your life and you're exactly where you were, that's not true. I'm definitely not going to be the person that tries to claim that we get rid of it. All right. But you can find a new way to thrive and have a full life. [00:14:28] Speaker C: Yes, and we talk about that a lot, about how line just changes you regardless, it doesn't matter. So whoever you were before, you're not going to be that person anymore. But most of the time, and so many guests that we've had on, they're the new, better version of themselves. So it's tough to kind of get over that acknowledgment that you are not the same person, but it's not bad. It could be an amazing thing. So we got to take. I always believe there's something good that comes from something bad, and I think that's one of them. And then I think the other one is that through our life journey, we meet so many incredible people, and that's been a huge blessing in my life. But, wow. So thankful for your husband, because had he not gotten sick, you may never have discovered what was wrong with you and your children. Oh, my gosh. I couldn't hardly take care of myself, let alone if I had to even take care of a child, let alone three. Yeah. Wow. [00:15:31] Speaker D: He's amazing, though. Even when we thought our kids possibly had autism, and you read about the percentage of people that get divorced because they just can't handle tHat, and him saying, we're not going to be that number. And then if he had only known, right? I had two daughters before I met this man. He didn't sign up for any of this and has just been the rock through it all. His parents at one point were helping do school pickup because I was on Topamax and Adavan and Marinal and all these things. I wasn't driving a car, and we were blessed to have them. And then we had to bring in somebody to help take care of the house and do laundry twice a week and all of those things. And so many people don't have that. You hear people who even pass because they can't get medical care. And it's heartbreaking. I submitted constantly to insurance, and after you pay your deductible, eventually they're like, all right, we'll pay part of it. They don't pay much, but they pay part of it. And I was blessed that I had that. But even after that, we still spend a quarter million dollars out of pocket just to feel better. And then. And then that's just to feel like you have your life back from there. I'm not going to lie. We still take supplements every day. I mean, our food is void of nutrients. We did that. So it doesn't matter if I have lime or not. Most of the time, we're not going to give it what we need. But when your guts tore up, you don't absorb the way you should. There's still the cost to maintain your health afterwards, even if you feel like you have gotten it back. [00:17:04] Speaker C: Yes, absolutely. And I remind myself all the time, because there are. There's times when I'm like, gosh, do I really have to keep spending this money that I do on this? Do I still have to do that? And I remind myself, wellness is so much cheaper than illness. So, yes, Tanya, you need to do that. [00:17:25] Speaker D: Sometimes my husband will say, my joints don't hurt anymore? Do I have to take my supplements? I'm like, what's the first thing you said? And he goes, my joints don't hurt. Never mind. [00:17:35] Speaker C: Sometimes we just need that little reminder. [00:17:38] Speaker D: Yeah, absolutely. [00:17:40] Speaker C: So, I know you mentioned that every time you quit the antibiotics, you would get sick again. So what eventually kind of was your turning point for you? Because I take it you're not on the antibiotics anymore. [00:17:53] Speaker D: No. And the big thing, and again, I'll say Western medicine has a place, but you got to bring in those different diet and lifestyle modalities. If you don't, you're not really truly fixing the problem. And so I brought in diet. I started reading up on it when I thought my son had autism. It was easy because it was him. He was my guinea pig. I cut out the dairy, cut out the sugar, cut out the gluten. He could cry all I wanted. But I ended up finding the autoimmune paleo protocol and using that, I tried different Lyme diets and everything got me to 80%, and then I go to a screeching halt, and then it kind of went backwards. And when I brought in the AFP diet, which says if you're strict about it, in 30 days, you can turn off that light switch over reactivity. Some people take longer. I was pretty strict for a good eleven months. I mean, maybe running three things towards the very end before I truly started doing reintroduct, because I had a clarity and energy and lack of headaches that I had not had in a long time, and I did that. And then, of course, you got to think about the lifestyle. You do. What kind of water are you drinking? What about the toxins in your home? I mean, it was a point where we were scrubbing our walls with borax, and we took everything you can think of, even the clothes out of the closet, like nothing was to be in the bedrooms, just so that at night our body could repair and not have to worry about what was in the room. We pulled the carpet out of the house, things like that. And I think people need to know. It's a multifaceted approach. There's no easy button. You're not going to get pills and be better, just like you're not, maybe, I would think, not going to just do diet and get better. I mean, we maybe can resolve some of the symptoms, but it doesn't mean that you're good. So that's when I truly felt like I got over that 80% hump to the new me, bringing in those Other things. [00:19:56] Speaker B: Okay. When did you decide, what made you decide that? Because each time you try to stop the antibiotic, then it start to flare. So when did you decide that you felt good enough or that now was the time to do it? And was it these life changes, all these things that you just talked about? Was that kind of what you implemented at that time, or was it another kind of protocol that you jumped into? [00:20:27] Speaker D: Honestly, I just got mad, because every time I got to the point where I probably shouldn't say this, but I was taking my own pick lines out, it was just like, okay, we're done. Out it goes. And then one would go back in, or they'd put a central line in, and I knew who I was anymore. I named my pole. It's like I developed this attachment to my pole. At one point, it was like part of my life and I couldn't do it anymore. So I knew, because this doctor, this particular one, kept going, you need to have more blue skies until you have more blue skies, referring to more good days than bad, I'm not going to take it out. And that just wasn't okay with me anymore. I mean, when I started to weigh the antibiotics and the money I was spending and the time away from my kids because of all the side effects from the antibiotics, and just, I couldn't. And so that's when I started researching the diet and different things like that. And so when I took it out that last time, I went to a different Lyme doctor, and with this one, she looked at me through a broader lens, I think, because she was like, all right, see this wheel? And she was explaining, she's like, we got to take care of your gut. You got to take care of your immune system. And she's going around that, and she goes, that doctor, why? He was great, and he did what he needed to. He started over here, and he didn't prep your gut. He didn't worry about any of these things. And now we have to go backwards and fix them, and it's going to be ten times harder. That made so much sense, right? And so I pictured my gut and my body being like this black and white movies after the war is over, and there's a couple of little burning shrubs on the ground, but it's like dirt, and there's all these dead bodies. That's my microbiome. Like, it was done. I refused. I was like, before I say I feel bad enough to go back to another pick line, let's bring in the diet. Let's start bringing in all these other things. And see if we can move the needle and even movement. In Northern Virginia, we have a lime walk every year. It's a lime run. We call it a walk, and we did it in the first time. I mean, I was bedbound afterwards, and then slowly I got to the point where I was able to start running it, but it took years, and so many people say, I can't exercise. I'll be bedbound. Okay, but you don't have to push past your hormones ceiling, like, get out and just move for a little bit and then see how you feel. And if you're not bedbound, that's okay. Then do it again tomorrow. I think movement is another piece that people, they're so quick to say they can't do, but you really have to do. People said, my joints hurt. Are you joints hurt because you don't move? I don't move because my joints hurt. You see what I'm saying? So I think those things really helped bring it home. And that's where I come in with the collective is everybody needs a functional medicine doctor, a Lyme literate doctor. Whether you have autoimmune, Massell, Lyme, whatever you have, you really need that person in your court, but you also need somebody who's going to look through it with those other modalities. Right, and support and enhance what they're doing. And so that's where I come in with supplements and diet and lifestyle changes and movement and mindset. Mindset is huge for these people, and it's lonely. It's really lonely to be sick. You can sit in a room of support room of hundreds of people who say they all have Lyme, and you're like, yeah, but you don't have a white man. I'm all by myself. You just feel like nobody gets it. And I just actually did a podcast the other day where I was talking about, nobody's going to get it until they've had it. So to sit there and say, you're so fatigued that if you stop at a red light, you may fall asleep, people don't understand that until they've had it happen. And so you just look like you're being dramatic. When I was dating my husband, he said, I've never had a headache. What's it feel like? And I'm like, what? You've never had a headache? How do you say you've never had a headache? To me, that was so foreign. But to think about it that way really helps to put it in perspective of how the families of people who have Lyme feel right. They can say they sympathize, but they don't know what it feels like. Just like my husband didn't know what a headache felt like. So if I'm, like, putting ice packs on my head and screaming for the motron, is he thinking in his head, oh, my gosh, he's so dramatic. Probably because he doesn't know what it feels. That's we really need to look at it both ways is kind of where I was getting at. So I don't know. Fred diamond and his love Hulk, lime, that was a big thing, is because he took it and he spun it, and it's like, this is how we see it, so how can we see it differently to help them? Because we don't know what they're going through. [00:25:33] Speaker C: Yes, exactly. And I learned. I shouldn't say I learned. So when COVID was big a few years ago, I had some family members and some good friends get it, and with them talking about the fatigue from it, and I don't know. And I did get COVID once, and I was fatigued, which still didn't even compare to how I was fatigued with Lyme, because it's just a whole nother level that you can't even explain. And when they were telling me how fatigued they were, I would ask them specific things, and they would answer me. I'm like, that is what I dealt with for years. And they're like, no, you couldn't have functioned like that. I'm like, exactly. So that was kind of my good about the whole COVID thing, is that some people really, and I had the most amazing support system, so I don't want to say that I didn't, but it's still, like you said, they don't get it until they get it, and they just don't. And even people that have Lyme, their journey isn't as bad as others. I mean, it's still a tough journey, but we're just all different. But, yeah, it's a whole nother level of fatigue that you just can't describe. But I still can't believe your husband had never had a headache. I'm kind of blown away. [00:26:55] Speaker D: He's had them now. Of course, he has Lyme now, too, so it's kind of affected his joints. But again, he's got such a great methylation system like his family. They're just such healthy people. So my sister in law contracted Lyme as well, and she got it chronic, and so she was pretty sick, and my husband and her husband are the brothers, and both of them are positive, and neither one of them have any symptoms. And I always say you got a great methylation system, and God gave me the return parts on the Walmart rack, but it does. It makes a difference. If you can't methylate and you can't get those toxins out, then how are you supposed to fight the Lyme? Right? How are you supposed to keep your immune system up? So I think that's important, and it does. It affects everybody differently. Even thinking about my sister in law, compared to where I was, she wasn't even close to me. And then you have some people who just stand up and pass out or end up in wheelchairs, which, thankfully, didn't finally occur to me. My daughter was hallucinating for a while, and then my son was seizing, and I was seizing. And everybody is so different that we just need to support them any way we can. [00:28:11] Speaker C: Yeah, exactly. [00:28:15] Speaker B: When did you decide that you wanted to start to help other people? [00:28:22] Speaker D: Well, I wasn't going to go back to my old career. My hands got so weak for a long time that I had to let my certifications expire, so I couldn't shoot a gun anymore, and I just did all these dives. I'm a digger. It's just my personality and nothing like a mama bear, too. So I spent so much time researching stuff that even before we knew we had Lymen, I thought my kids had autism. I was going down these rabbit holeS, and then my son ended up in head Start program, and these other kids were in there, and I'm talking to the parents, I'm like, you shouldn't be feeding them mac and cheese, right? Let me tell you why. And as my son started to talk and started to actually learn how to button his shirt by himself and all these things, they were like, what are you doing? And so then I started helping them, and then my husband's like, you really don't have any credentials to do that. You really probably should go to school if you want to do that. And so that kind of started it as we talked about that, and then, of course, we went down the line journey, and then that was it. I didn't want anybody to spend as long as we spent, because there's so much misinformation out there or there's so much information. People get analysis, paralysis, and they just can't move forward. It's not an easy button, but at least let me help you weed through it a little bit and kind of navigate it for you. So that's what put me on this path, and I think it was on purpose, honestly, I think we all. [00:29:51] Speaker C: It was. It was meant to be. I'm sure of it. [00:29:55] Speaker D: Yeah. So I could be here today having a hot flash in front of you guys. [00:30:02] Speaker B: All the events in your life led up to this very specific moment right here. [00:30:09] Speaker D: Absolutely. [00:30:14] Speaker B: Because obviously, this is such a broad subject, and there are so many different directions you can go when you're working with Lyme patients. What does that look like? And how does that journey look like when you're guiding them towards wellness? Obviously, I assume you don't do pick lines and antibiotics at this time, correct? [00:30:38] Speaker D: No, I do not. So I really think we need to address the foundations. And even people who just want to maintain their health need to address the foundations. And that's the part we're forgetting about in healthcare. My big thing I tell people is our health care is founded on an illness model with quick fixed pharmaceuticals instead of on a wellness model. And if we just every day focus on our mindset, our digestion, our movement, our lifEstyle, balancing our hormones, our metabolism, like these things, these are the foundations of our health, right? We'll keep our inflammation down, we'll keep our immune system up, and it doesn't matter what you're coming in with, honestly, you have to address those things. And then once we clear that white noise out, that's when you really start to see what's standing out for people. And then it is possible to still have an anti inflammatory food that doesn't work. Like, I've had somebody who couldn't have cauliflower, and I'm like, that's white water. It just blew my mind. Or somebody who can't have pumpkin, or all these foods that are supposed to be good are still trigger foods for them. Or you do you have somebody who clear the white noise, and then clearly they've got parasites, or they've got Sibo or something under there that needs addressed. And we can address that. I absolutely can help walk them through that. I know when it's time to say, okay, we need to bring in a functional medicine doctor to work alongside of us. These supplements are not going to do the trick. But we can pivot. We can overlay the diet in order to bring in a low fODMap or a low histamine or whatever we have to do. And then I do supplements, just not prescriptions. [00:32:24] Speaker B: What does that journey look like? Meaning that because here you have a person, they may be dealing with parasites, they may be dealing with Lyme co infection, they may be dealing with mold. They got mass cell activation. So you have this whole terrain of dysfunction. How do you start with that? Do you just kind of jump in on one of them, or do you have a certain process that you go through? [00:32:54] Speaker D: Both. I think you need to start pulling the inflammatories out of the diet right away. I think you need to start focusing on sleep, focusing on mindset, all of those foundational pieces. But then you do have to consider what a priority is. Like, do we need to stop and address something right away? So, for example, if somebody's got parasites, they're not going to get rid of the Lyme Till you address the parasites, right? And if somebody's got mold, we need to address the mold in order to bring them down, or else you're not going to get mass cell down if you don't address the mold before the mass cell. So it's just, yeah, you have to kind of figure out the layer there in order to get maximum benefit. And sometimes you can treat more than one thing at one time. Right. So it really does depend what they come in with. And I say that saying that everything you mentioned is so common to having one single person with that. First thing you got to do is get them out of the moldy environment. Right. And then hopefully open up their detox pathways, let them start detoxing from the mold themselves. You can give them an overlay in the diet that helps with mycotoxin exposure. Why? Also, my next thought would be, okay, let's look at the parasites. Because if we get the parasites gone, we get the mold under control, then we can look at histamine or mass cell and look at Lyme. [00:34:18] Speaker B: And how do you assess an individual to see what's going on? There are certain labs that you like, or do you do muscle testing? Do you do or energetic testing? How do you assess an individual? [00:34:31] Speaker D: I do not do muscle testing. At one point in time, I did do some training on it, but I've never stuck with it. When I was in a brick and mortar practice and people would come to me, I'd do some more functional evaluation stuff. Now I do like labs. If we need them again, doesn't matter what you got wrong with you, we're going to hit the, you know, I can't do all labs. There are some labs that I'm trained in. Know if you want to do an organic acid test, you want to do a GI map, you want to do food sensitivity testing, I can do all those. If we do anything bigger than that, I go through Rupa Health, and so then I have that physician who kind of helps alongside of me to make sure that it's deciphered correctly, which is a fantastic. I don't know if you have looked into them at all or not, but they are fantastic. You see, ever if you have Avexia, places like that. But we do get the testing that they need to do. Most of the time. When people come to me, though, they already do have somebody in functional medicine. And so if they go through them, they may get a little bit more covered with insurance. And so I push them to get the testing over there and then just bring it over here and I'll work with that person because I never want to go against a physician's orders. But also, you're going to spend a lot of money to begin with, so why not do it the cheapest way we can? Let's see what we can cover by insurance. Let's see what we can treat without labs. And then when things are still sticking and we're stuck, that's when we'll bring the labs in. [00:36:00] Speaker C: I love it. We need people like you that do what you're doing for sure. And yes, you don't just have lime, you have a million other things. Yeah, it's not just lime for sure. Or at least I think one of the few things I didn't get was mold. Thank goodness, because I hear it's not fun, but, yeah, just so many things go along with it. So that's great to hear that. You start with the foundation of our body, and I think that that's, in the end, what gets people all the way better and keeps them better for sure. [00:36:36] Speaker D: Where the body gets so over responsive. Right. And then you end up in this constant state of fight or flight, and it won't come out. They say you're supposed to be, what, in a parasympathetic state, like 80% of the time, which I'm not sure it's possible in our day and age to be that way. But I feel like most of them are not at all very minimally, maybe when they fall asleep, but they can't even sleep because they can't get into that. Right. And their circadian rhythms all messed up. [00:37:03] Speaker C: We're just all a hot mess. [00:37:06] Speaker D: Yeah. And then you got to work, do some vagal work and all that kind of stuff. I do like essential oils for that, but there's just so many pieces, and that's where people have to realize this is a process. You're not going to feel better in a week, you're probably not going to feel better in a month, but in a couple of months, I want you to look back. So even giving them, like, an assessment, just to give them a piece of paper and say, self select, I want you to answer these questions, how you feel. And so I do that a lot, and they go to answer it again, and they're sure they feel like crap, but they answer it. And then when you compare it to the last one, then they actually get to see they are making progress. Not as fast as they want, but it takes time. Yes. [00:37:45] Speaker C: Tracking things is so important, I think, because it also gives you that reminder that if you have something stuck in your head, one specific issue, and that isn't going away, you may not realize that, oh, my gosh, I'm sleeping now, or, oh, my gosh, this. So tracking and journaling things is so good. [00:38:08] Speaker D: Yeah. And helping them visualize where they want to be and accepting that they're worthy of a healthy self. Right. We all get to where when the mindset part goes and we feel like we're not worthy to be healthy again, we're not worthy of all those good things. We have to remind ourselves of that, because with mind being a powerful piece, and I used to not be a mindset person. I used to be like, okay, everybody, put your big girl panties on, and let's just do. I realized, no, we all have a piece of it. It's just you can actually convince yourself that something's not going to work before you've even started it. So you do have to be open to change and not knowing what that change looks like, not knowing what the new you will look like, but that you're open to that. [00:38:56] Speaker C: I love those words. Open to change. Yes. That's so important. So important. [00:39:01] Speaker B: Well, Jamie, this has been awesome. Thank you so much. Thank you for everything you're doing, and thank you for writing about the deer and the cow. Yeah, I'm really intrigued. Now. [00:39:16] Speaker D: If you read my book, tell me. [00:39:18] Speaker B: What you think, okay? Absolutely. [00:39:20] Speaker C: Yes. Thank you so, so much. Your children are blessed to have you as this knowledgeable person. And again, I'm still always grateful for your husband, but, yes, we appreciate what you're doing for the Lyme community. So thank you. And thank you for sharing with us. [00:39:35] Speaker D: Absolutely. My pleasure. [00:39:36] Speaker C: All right, thank you. Bye bye. [00:39:45] Speaker A: The information this podcast is for educational purposes only, and it's not designed to diagnose or treat any disease. I hope this podcast impacted you as it did me. Please subscribe so that you can be notified when new episodes are released, there are some excellent shows coming up that you do not want to miss. If you're enjoying these podcasts, please take a moment to write a review, and please don't keep this information to yourself. Share them with your family and friends. You never know what piece of information that will transform their lives. For past episodes and powerful information on how to conquer Lime, go to Integrativelimesolutions.com and an additional powerful resource, Limestream.com, for lime support and group discussions. Join Tanya on Facebook at Lyme Conquerors Mentoring Lyme warriors if you'd like to know more about the cutting edge integrative of Lyme therapies My center offers, please visit thecarlfellcenter.com. Thank you for spending this time with us, and I hope to see you at our next episode of Integrative Lyme Solutions with Dr. Carl Fell.

Other Episodes

Episode 109

April 13, 2023 00:36:00
Episode Cover

Episode 109: Jeni's Story

A childhood lost to Lyme.---

Listen

Episode 95

December 21, 2022 00:32:53
Episode Cover

Episode 95: Tanya's Story

Tanya opens up about past emotional trauma. We discuss how trauma can affect your health and healing.

Listen

Episode 91

November 23, 2022 00:57:09
Episode Cover

Episode 91: Lizzy's Story

Lizzy Lymon was an active working mom who unknowingly was flattened by a tick bite. She spent the next 4yrs deteriorating, bedridden, searching for...

Listen