Episode 147: From Near-Death to New Beginnings

Episode 147 January 17, 2024 00:44:34
Episode 147: From Near-Death to New Beginnings
Integrative Lyme Solutions with Dr. Karlfeldt
Episode 147: From Near-Death to New Beginnings

Jan 17 2024 | 00:44:34

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Show Notes

On this episode of Integrative Lyme Solutions, we're joined by Tara, who shares her personal experience with Lyme disease. Beginning in 2012 following a mosquito bite, Tara faced a slew of symptoms, including fatigue, pain, tremors, extreme exhaustion, and the inability to walk. Despite a positive Lyme test, doctors in her home state of Illinois refused to acknowledge Lyme as the source of her symptoms, putting her through ten strenuous years of misdiagnosis and inadequate treatment. Still dealing with occasional seizures and other symptoms, Tara spent years of her own time researching, finding treatments, and advocating for herself. Her journey inspired her to go back to school for talk therapy with the goal to provide support and understanding for others battling Lyme disease, she even wrote a book about her experience.

You can find her book From a Wheelchair to Walking One Person's Lyme Story in Illinois on Amazon.

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Episode Transcript

[00:00:01] Speaker A: Welcome back to Integrative Lime Solutions with Dr. Carl Feld. I am so excited about the show. [00:00:07] Speaker B: That we have ahead of us. [00:00:08] Speaker A: We have some phenomenal information that could save lives. I am Dr. Michael Carlfelt, and with me, I have my co host, Tanya Hobo. [00:00:19] Speaker B: You're going to need to tune in to what's going on today. [00:00:23] Speaker A: The information is impact. So, yeah, don't step away. [00:00:29] Speaker C: So excited. Let's go ahead and get this started. Welcome to Integrative Lyme Solutions with Dr. Carl felt. And today our guest, Tara is joining us and she's going to share her journey with us. We appreciate you joining us. Welcome, Tara. [00:00:54] Speaker D: Hi. I'm glad to be here. [00:00:55] Speaker B: Well, I'm so excited to hear your story. Tell me a little bit about how it all began. [00:01:04] Speaker D: Okay, so I started getting sick in 2012. I got bit by a mosquito in Melrose park. But my history. I grew up in West Virginia and Chicago back and forth, so my parents picked ticks off us as children, and I never thought anything about it. When I got bit in 2012, right away I started getting symptoms like fatigue, pain in my neck, just a lot of weird symptoms. And when I went to the doctor, she tested me for West Niles and Lyme, and I tested positive for Lyme within, like, a couple of weeks. When I stood up, I couldn't walk. My legs would just fall out from underneath me. I started getting, like, tremors. Really bad headache, like pain, exhaustion, complete exhaustion. I was getting, like, tremors in my face, my hands. The doctor gave me three weeks of antibiotics, and then that was all the treatment there was for Lyme back in 2012. So when I didn't get better, I went from doctor to doctor, asking them to help me, and no one would help me here. They told me that we don't have Lyme here in Illinois. I had a doctor write up that I needed mental health services. It was all in my head, and it took me about ten years. I was in a wheelchair. I started having 20 seizures a day. It got to the point where it was so bad that when I went to feed myself, my brain couldn't tell my hand. My motor skills are off, food was just falling, my speech was really bad. It's like I had Als. And then, I think, the worst experience I had, I went to a regular doctor. She thought that I had mental health issues. She put me on depression medication, and she took my husband, which is now my ex husband, to a room and told him that I could stop all this if I really wanted to. It had gotten so bad. I was in bed for nine months. I was stuck in one room. I couldn't walk. I had to crawl to the bathroom. I needed help putting on my socks, my shoes. My hands would fold up like this. And I was seeing neurologists, I was seeing all different doctors. And all of them would say, oh, well, you do have a positive Lyme test, but it's not Lyme. Lyme doesn't do this to you. And it got to the point where I was literally, like, trying to research in bed, but I couldn't sit up, so I would lay in bed and take notes. I watched all the Lyme summits. I started looking into alternative treatment, like ozone. I found things like my body wasn't detoxing, so I had to open my pathways. I used ldn for the pain and help my immune system. I needed to detox my brain, so I found ways to help myself. But it was a horrible experience. [00:04:58] Speaker C: Absolutely gaslighting at its finest. Right? That is just crazy. And a lot of people go through that. I'm so sorry that you went through that. Did you ever doubt that you were dealing with Lyme when all these other people were saying, well, you don't have Lyme, right? Because even if you're tested positive, you did three weeks of antibiotics, so now your Lyme is gone. [00:05:26] Speaker D: They told me that I should be cured. [00:05:28] Speaker C: Yes, exactly. This whole time, you're going to all these neurologists and doctors, and they're telling you and your husband that there's nothing wrong with you, it's in your head. You can change it. Did you think in the back of your mind that it was really Lyme disease and this is what it was doing to you? [00:05:47] Speaker D: I did. But at the same time, I think so many people didn't believe me that I don't want to cry, but so many people didn't believe me that I became suicidal. I didn't think that my life was worth anything. I couldn't get the doctors to believe me. Even people in my life, they didn't believe what I was saying, that it was so bad. I mean, the pain at some point was just horrible. And I think that's part of the reason my kids helped me write a book that we just threw on Amazon. And I'm not an author, but in 2016, they told me there was nothing else they could do for me. So I figured I wasn't going to survive. So I thought, well, if I'm not going to survive this, at least I could put everything down in the book. And maybe it'll help someone else. So that's what we did. My son helped me write the book, or helped me do the COVID and my daughter edited it, and we threw it on Amazon. From a wheelchair to walking one person's Lyme story in Illinois, and I gave it to the hospitals, the libraries, anything I could to just help other people not go through this, because this was horrible. This is over ten years, and I still have seizures. I don't get them like I used to. I get them about once a month, but I still have effects that I think that if I was properly treated in 2012, I don't think that I would have to be dealing with this today. [00:07:40] Speaker C: Yeah, I hear you mentioned that you were suicidal, and that is just the most horrible feeling to be like that, because we can't have hope without these doctors giving us hope that something's wrong with us and that they can fix us. Did you ever feel at any point that maybe the doctors were right, nothing was wrong with you, it was all in your head? Did they? Have you ever, have you convinced of that? [00:08:12] Speaker D: I did have to do, like, an evaluation at one point, I was at a hospital where a doctor wrote up that I need some kind of evaluation, but I wasn't mentally ill. I didn't have schizophrenia or anything like that. I had pain and physical symptoms, and I would explain to them, I came from West Virginia. We picked ticks off of us. I got know in Melbourne's park. There was no way. At some point, I think I had to realize that I had to advocate for myself, because the doctors were just over and over saying, it can't be Lyme. They said I had lupus fibromyalgia. The last diagnosis was possible, Aos. When I was in the wheelchair, and I knew that the time frame for AOS is not long. Your life expectancy is not long. So then that's when I started researching detox. Like, detoxing my body, opening my pathways, getting all the toxins out, and that really helped me. And then in 2019, an infectious disease doctor here in Illinois looked at all my paperwork, all my tests, and he said, you still have Lyme. You were not treated. And he started treating me. He gave me 28 days iv antibiotics, and the brain stuff started to clear up. I started to be able to think, I started to be able to get my memory back. My body stopped hurting so much. It was just 28 days of medicine, and it did so much for me, but I had to fight for ten years to get it, and that shouldn't happen. [00:10:07] Speaker B: It shouldn't I mean, it is criminal. And then having doctors and convincing you that it's in your head and literally pushing you towards wanting to commit suicide. [00:10:19] Speaker D: My son's going through it now. He has Lyme, too. And I don't know what's harder, going through it yourself or watching your child go through it, because he's had all the symptoms all these years, positive Lyme tests, and we're still dealing with the same thing in Illinois in 2019. I wrote all the senators. I told them my story. I told them what happened to me, and they did change some laws here. Like, now we can treat past three weeks in Illinois, but people still are suffering. It's taking too long to get diagnosed. It's taking too long to get treatment. And by the time they treat what Lyme has already done to us, I don't think we're at a curable state with what we have in our bodies now. I don't know. [00:11:16] Speaker C: It will not just allow so many years of just the Lyme just eating away at our bodies, doing so much damage because we can't get a proper diagnosis. It's very sad. I had reached out to you because I saw your article in the Lyme disease. It was just. You're just a voice that needs to be heard by people, because this is our reality for so many of us, and it's not fair. And like you said, they changed some laws in Illinois, but we have come a long, long ways since I got diagnosed in 2015. But we still have a long ways to go. But changes are coming, and they are happening, but definitely not fast enough to appease me anyways. [00:12:13] Speaker B: No. Your son, were you able to kind of shorten? What type of symptoms is he dealing with? [00:12:23] Speaker D: Well, he was born really sick, so I believe now that I had Lyme, like, for years, he was born really sick. There was a lot of issues, him growing up. He has neurological issues, a lot of tremors. So they treated him again in 2020, but then he couldn't handle the antibiotics anymore. So he has, like, a really bad infection in his stomach. So we've been just trying to treat him, but in a way where his body can tolerate, because it's been last a long time in his body, too. So he gets the tremors issues walking sometimes. He's only 19, so to see him go through this, it's really hard. It's really hard. I didn't want my kids to go. [00:13:21] Speaker C: Through it, but he definitely has. The best advocate for him is you. Unfortunately, you had to learn that the hard way going through it yourself. [00:13:32] Speaker D: Right. [00:13:33] Speaker C: So, back when you were sick and these doctors were not treating you for Lyme, and you said that you just kind of studied things and started detoxing and opening your detox pathways, what types of things did you do that helped you, and how did you find this information? Did you just read library books like I did, or did you Google? [00:13:56] Speaker D: I joined a lot of Facebook groups. I watched all the Lyme summits. I took notes on, like, when the doctors were speaking, I would write notes. So the first thing I realized is my brain was really foggy and my skin smelled like ammonia, so I knew something was wrong. My body wasn't like detoxing, so I went and got tested. So I have two of the MTHFR genes. Even if I was killing the line, nothing was getting out of my body fast enough. And it was just like recirculating. I had what they would call, like a fatty liver, but I don't drink, so my liver wasn't detoxing. So I started detoxing my brain, detoxing my liver. I use neuroantiox, cstnf, Pns. It's like a brain detox I found online. I use heptosenergy to open my pathways. LDN was big for me because it helped with the pain, it helped with my immune system. I wasn't sleeping either. I would sleep like 3 hours, and then my body would just jump up awake. I think that my adrenals and everything were affected. And like I said, I'm not a doctor, but as I was researching, I was like, oh, let's get this test. And then as I could afford it, because everybody knows Lyme is so expensive, so expensive to treat. I did ozone therapy, I did parasite kills, I did different things that probably not everybody would try, but I was so desperate, I just wanted to get well. And at the time, my ex husband, he believed me that I was sick. So he would drive me to different doctors in the states, all around Illinois, to get me some. It was. It was rough, but I think finding what would help me, because the same thing that worked for me isn't exactly the same, that's working for my son, because my son's issues is mostly like gut issues, where mine was more neurological, so it affects everybody differently. [00:16:23] Speaker C: And that's a perfect example of it. We all have a lot of the same symptoms, but some of us can have more just pain issues, some people can have neurological issues, and then the treatments, we can be diagnosed with the same Lyme, the same co infections, but one treatment doesn't work, doesn't do anything for one person or maybe makes them feel worse, whereas the other person, that was, like, their ticket to getting well. That's why I love these shows, because we talk about every form possible. I'm pretty sure nobody's going to shock me yet. Right. Like, with some form of treatment that they did that worked because there's just so many different ways that people share that they get better, but you're definitely one that had to become their own advocate, like many do. [00:17:16] Speaker D: I saw over 40 doctors, and I think the ALS one, it scared me enough where I realized that if I didn't do something, I wouldn't be around for my kids because I was just declining. I was in a wheelchair at that point, and my speech was so slurred. I had a nurse ask me if I was autistic because I couldn't verbalize what I needed to say. And then I got, like, PTSD from going to the doctor because I didn't want to experience whatever they would tell us, like, all these crazy things. One doctor wrote up a paper saying I needed mental health services, like inpatient, just because I had my positive Lyme test with me, and I was just trying to show him, look, I have Lyme, and I always say the same thing. I don't know if that's what's causing this, but this is what started this, and they wouldn't listen to me. [00:18:19] Speaker C: That is just so messed up. It's one thing that if there's doctors out there that just flat out aren't familiar with Lyme, they don't know anything about it. That's one thing. But to have a patient come to you over and over, here's my test. I have Lyme disease. Look at all these issues I have. I can't talk. I can't think. I'm in a wheelchair. Help me. And then for them to say, no, that's not your problem. That just should be criminal in itself. It really should be. [00:18:56] Speaker D: And there's so many people going through it. [00:18:58] Speaker B: Yeah, because they are clueless, then the only place to go, well, it's got to be a mental health issue, and here you are fighting for your life, and now they're putting that additional stress on you. That's horrific. So tell me a little bit about your journey out of the wheelchair. What did that look like? You mentioned some supplements that you used to open up your detox pathways. How did you respond to that, and what did next step look like? [00:19:37] Speaker D: For me, I had to go really slow because I think I had a lot of Lyme in my body, and I got overwhelmed really fast. I had, like, a mass cell reaction, so I had to go super slow. So when I was in the Wheelchair, I would do, like, lifts on my arm lift, legs lift, to try to keep my muscles working. So it was slow. So I got out of the wheelchair, but then I was on a walker off and on for about a year, and then I was on a cane for a couple of years. And then I was constantly trying to push my body to work. Sometimes it would work, sometimes I would stand up and my legs just didn't have the strength to do it. So I had to push myself a lot to just get up. I started reading different books, like you said, reading different line books. And I also kind of worked on my mental health because I thought, if physically I'm not able to get up, I have to be mentally strong, because the next doctor that tells me it's in my head, I'm going to speak up for myself. And I started to. And I started to say, no, this is not right. I have a positive mind test. I need help. If you're not going to help me, I'll find someone else who will. And then I just kept going until I found a doctor, like that infectious disease doctor here, and he said, yeah, you have Lyme? You've had Lyme this whole time? It's classic cases of everything. I was explaining, I would get. One side of my face would just drop. I would get the bell's palsy. You can't make that up, right? Some of the things that was going on with me, there is no way. You'd have to be the best actress in the world. It took a long time. [00:21:34] Speaker C: People think that. They just think you want to lay in your chair and whether you pee your pants or not, because you don't even know it or you can't move. Yeah. This is how we want to live our life. It's all about attention for me. I want everybody just to swoon over me or something. Who in their right mind, I guess. What is that? Munchausen Diesel. I know that there are some psychological issues out there, but when we have Lyme and we're telling these people that this is what's wrong with us, we are not making this stuff up. And it can sound crazy because obviously for you, you were in a wheelchair. But for some people who look really good, how can you possibly be sick? You look amazing and you're walking and you're talking, and nothing must be wrong with you. And we get. What's that word? Is it stereotyped or. They profile us. Oh, here comes another person that has all these issues, and there's nothing wrong with them, and it's just so messed up. It's just so messed up. [00:22:50] Speaker D: I don't understand what people think we get out of being fake sick, right? What do we get out of it? No one helps us. When you have Lyme, it's not like, I'm sorry. I deal with people with cancer and different things, and I don't want to put them side by side, but you deal with a cancer patient and you have all this support. I know my ex husband went through cancer. I know there's support there. When you have Lyme, you're lucky if you have a couple of people that still sticks around with you and stays, because they just think that, how can you be sick one day and okay the next? How can you be up and then how can you be in bed where you're so sick, like, you can't move? I've had people in my own life tell me, you can't be that sick or you did this to yourself. And I would say, why would anybody want this? What do you get out of this? Like, even my own son, I will do anything to get him better. Why would you think that I would do this to him or to me? We just want help. And I told the doctor, if you just help me, that's all I want. Just help me. And he did. He gave me the pick line for 28 days, and it was like a light switch. My brain came back. And what gets me is I had blue cross blue shield insurance when I first started all this, and they quoted me $20,000 to get an iv. And this whole time, I could have been better. I lost ten years of my life. I couldn't talk, I couldn't read. I was stuck in a room for nine months. You tell me, who wants that? So I told myself if I ever got better, if I ever got out of that room, I was going to go back to school, and I was going to go into mental health talk therapy, and I was going to help the Lyme community, because we're lost. There's so many of us that are there. They're like, where I was, where you're kind of like, you don't fit in a normal life because you're not healthy. No one believes you, and you're at the point where you really just need help. So I thought, well, if I could go back to school, get better, maybe I could help someone and they don't have to go through ten years of what I did, because I lost a lot in those ten years that I can't get back. So I'm going to take what happened to me and help my son and help other kids and other people go through it. You don't have to fight like I did. [00:25:41] Speaker C: Definitely need therapists that are familiar with Lyme disease. Who better to be a therapist like that than somebody who went through it? Know, Dr. K and I talk about this a lot. Like, he's an amazing, incredible doctor and super compassionate, but he doesn't know what I went through. He doesn't know what his Lyme patients went through. He can only base it off of what we say. But there's that old saying that you don't get it until you get it. And it's just so hard to describe in detail to people what we go through. And so, for you, your journey that you've been down, to be able to give back and reach those people that are desperate and in despair and want to end their lives, like, who better to be able to relate to them than you? So I think I love it when people take their Lyme journey and completely change their career to get back to the Lyme community. It just warms my heart. [00:26:54] Speaker D: Well, I used to think that this happened to me because I did something wrong, or. I don't know. And I used to blame myself a lot for it. And then I realized it happened to me because I'm not going to stay quiet. I'm not going to just sit back and let this happen to anybody else. And maybe I can't make a lot of changes. I'm not a doctor. Lyme financially destroyed me. But if I could just maybe help one person, one family, not go through ten years of it, then it's worth that. I feel like we have to help other people, and I see that a lot in the lime community. They're all helping each other. They're trying. One example, I had a woman who. Her mother didn't believe her at all about the lime. And I said, just give me your address. I said, I'm going to send you a book. Put it on the coffee table, leave it. Her mom picked up the book, and she said after she read it, her mom came and talked to her and apologized that, I did not know you went through all that. All that pain and suffering. Because we look so well on the outside, but on the inside, it's like we're fighting for our lives. [00:28:14] Speaker C: Wow. Just raw sending one book and to have that girl's life probably change from that. And I absolutely agree that I feel I went through my lime journey because I do like to talk a lot and I want to be out in that lime community advocating because God knew that I wouldn't be quiet. I'm going to shout it at the rooftops. And that's what I do. Because we need to be heard. We need to be heard. And so same thing with you, that he had a path for you and this is what it was. [00:28:52] Speaker D: I believe that, too. I believe it. I had to suffer for a lot of it. But I find joy in every just, I think from being so sick, you get a new outlook on life and you just want to live every day to the fullest. And if you could help other people while you're doing it, it's all the better. Because I wish someone was there to help me, like maybe a therapist or something, because I had such bad depersonalization, I couldn't even open my door to people, like, even like the UPS person or was just, I just hid away kind of because the pain was so bad and my speech was so bad, I was embarrassed. I just don't want anybody else to have to go through that. That's horrible. [00:29:46] Speaker B: Yeah, definitely. I couldn't agree more. Nobody deserves going through that in any shape or form. On your healing journey, how long did that take? You started very low and slow and careful because obviously your system was very run down and been beaten up for all these years. So how long did that journey take? And you mentioned you did ozone ivs along as well. So what are all the things you incorporated? [00:30:23] Speaker D: Well, I also found out I had mold illness because I was working in a company that we constantly flooded. And then my house had black mold, so I was dealing with that, too. So that's why I researched ozone, the journey itself, from starting treatment, like heavy duty treatment with different ozone, the herbals that I took, it took about six years of me getting, like, I would get better, then I would have setbacks. And I was doing really well. And then I got Covid and Covid kind of like threw the line, made it come out again, which is. That's what's going on with my son, too. Yeah. So it took about six years after I realized this is what I have and how am I going to get myself better. I tried different know. I read Dr. Holwich, Howwich's book, all the books that I could get my hands on. Yeah. When I could read about six years. [00:31:34] Speaker B: It took about six years for you to get back on your feet. I mean, obviously, you're mentioning you're still dealing with seizures. Not as frequently. They're monthly rather than. What did you have, like 20 a day? Is that what you said? [00:31:49] Speaker D: Yeah. Any scented items would cause me into a seizure. Lights flashing would cause me to have a seizure. I have, like, frontal lobe seizures, so sometimes I would urinate on myself, things like that. We tried different seizure medicines. It didn't work because mine are Lyme induced seizures. I never had seizures before, so I haven't been able to drive since 2013. So I'm hoping one day I could get the seizures completely gone. And I'll be driving. Yeah, about six years from all the treatment. [00:32:34] Speaker B: Yeah, that's a long time. So 16 years battle. [00:32:39] Speaker D: Well, a total from 2012 to about 2020. About 2020. Because I had just had the iv antibiotics for 28 days, I really started to see myself move. My brain improved. A lot of the trimmers in my hands improved. I would have, like, a drop foot where my foot would just kind of hang behind me. That cleared up. So then after I had the antibiotics, I just detox my body. I focus on detoxing a lot, and that really helps. [00:33:18] Speaker C: So what are you currently doing? [00:33:24] Speaker D: Currently I do CBD products. I take antihistamines for my masks out because I still get around scented items, like anything. Scented fabrics, sheets, anything like that. I'll go into tremors and seizures. So my house is scent free. Everything is scent free. We don't have any scented items here. [00:33:50] Speaker C: And so it would probably be really hard for you to kind of go out into the real world because everything is so toxic and scented, and that's got to make it really hard. [00:34:01] Speaker D: Well, I work from home. I found a company that hired me knowing I was sick. And they're great. A technology company here out in Dallas, Texas. I'm in, you know, and if I have a seizure, I could go lay know. They're very flexible, and it just works for. And even in therapy, I'm going to be a talk therapist, so I'm going to do online therapy for people with disabilities, for people at home, so I don't have to be outside. [00:34:39] Speaker C: Okay. [00:34:40] Speaker B: And I'm curious through this journey, you divorced your ex husband. What was it that pushed that that made that go about? Was it in relationship to your lime? Or was it just other things? [00:34:59] Speaker D: No, him. He was pretty much. There was at times he didn't believe me, but then when he saw it himself, like, my hands freeze up, my legs freeze up. He did help me a lot with the treatment and everything. I think Lyme wears down every relationship. It's hard to have a relationship with one healthy person and one unhealthy person. So he wind up getting cancer, and then I helped him get through treatment, and then we just decided it wasn't working anymore. So he wind up moving on, and I'm here with my children. [00:35:43] Speaker C: It doesn't just destroy our lives, the sick person, but it destroys so many relationships, marriages, relationships with your friends and your family, because there's so much. It's very complex to understand, and so not everybody believes us, so it ruins so much in these relationships. [00:36:11] Speaker D: And I've got to the point where I'm not going to have to explain myself anymore. I've been through this journey long enough to know that alimus does really terrible things to your body and to everything. And if I'm not having a good day or I don't feel well, I don't need to explain it to anyone. And if they don't understand that this is complex and hard, we can't really keep explaining ourselves to people that just don't get it. They're not going to get it. [00:36:46] Speaker C: They're not. I remember I was quite a ways into my treatment journey, and somebody would call and say, hey, Saturday, can we go do whatever? And if it was something I was physically capable of doing, and I would say, you know what? I can't. Because Friday I have to go to the doctors and they're like, no, not Friday, Saturday. I said, yes, I understand that. But because I had to take a shower and get dressed and physically go to the doctor's office and deal with all of that, I can't do anything Saturday. Like, I'm spent. I'm done. And people couldn't understand that. I don't know why she thinks she can't do anything the next day. It's just hard to understand. It really is. [00:37:37] Speaker D: They don't understand the spoons. [00:37:39] Speaker C: We only have spoons we love. [00:37:41] Speaker D: Yes. To do what we could do. And sometimes you can get up and take a shower and that's all you're going to be able to do. Today. My daughter says the same thing. She'll say, mom, do you have enough spoons for that? So that's what we call it. [00:37:58] Speaker C: I love that because we did that, too in my family for the years, because I would just tell them, middle day, I'd be like, this is how many spoons I have left. And they knew exactly what it meant. I didn't have to explain to them. And it was funny because at one point, I can't even remember who got them for me, but somebody got me this box of chocolate spoons, and I was like, this is so great, right? You kind of have to laugh about things and make things a little humorous in order to not cry every day. But, yeah, no, for those listeners out there that have never heard the spoon theory, you can google it and look it up. And I think it was originally for somebody with, like, lupus or some other type of chronic illness, but it absolutely goes along with how we feel. So if you need to describe to somebody how we feel and what it takes out of us to get through different simple tasks during a day, it's an excellent description of what we go through. [00:38:59] Speaker D: And this is like a lifelong journey. I don't think about Lyme every single day, but I know that I still have it, and I kind of just look at it like it's part of me. So if I have to take a nap at 10:00 then I just do it. You wouldn't expect a person going through a different disease to be well and going out three or four days a week or something like that. So I don't know why it's expected from the Lyme patients, but now I just say I'm tired, I need to rest. And I think more people, once they realize that this disease is kind of like just with you, because I don't know that we're getting cured. I haven't seen anyone cured at this point. I mean, they still have some kind of effects, especially if they've been left long term, untreated. So I just think we just try to live the best we can with what we're dealing with. [00:40:01] Speaker B: Yeah, I agree. Well, Tara, this has been amazing. I'm so grateful for you sharing your journey and your story, and it's so important for people like yourself. If you would have heard yourself while you were going through from doctor to doctor, telling you that you need to go to a mental institution, and then getting to listen to your own story at that time, recognizing that it's not in my head, this is real, this disease is making me behave in this way. It's not a mental disease. So that's why it's so important to kind of bring this type of information out and your book that you have so people can read and see what people go through, any kind of last thoughts or anything that you feel we haven't touched on that's important for people struggling with Lyme to know. [00:41:06] Speaker D: I think that the main thing that take away from it is for people to know that they're not alone. They're not. There's so many cases and so many people in the community. No matter what state you are in, if you go on Facebook and type in, say, illinois lime, there's a group. There's a group in every state and around the country. So if you feel like you're at the end of the rope, that you can't do this anymore, because you're going to get there at some point with the lime journey where you just can't do it anymore. Reach out. There's always someone here to hear you and listen. And maybe we could just help each other just get through it until we can get treatment for everyone and get everyone better. Because the suicide rate is really high with Lyme. I know I help with suicide costs before, and it's horrible. The rate is really high. If we can do something to change that, that's what I would like. And tell people just to hang in there. Things are changing, the laws are changing. We're going to try to make a difference, even if it's one person at a time. [00:42:28] Speaker C: Yeah, that's what I say. Just one person at a time. Those are fantastic words. And I'm so thankful to have you and your voice in the Lyme community helping people and the many people that you're going to reach after you graduate and get to be that therapist. So we need you. We appreciate you. Thanks so much for sharing with us. And I don't ever have to tell you to shut up because I know you won't just like me. [00:42:58] Speaker D: That's how everybody gets a treatment. [00:43:02] Speaker C: We won't quit. So thank you so much, Tara. We appreciate you. [00:43:06] Speaker D: All right. Thank you for having me. [00:43:08] Speaker B: Thanks so much. [00:43:16] Speaker A: The information this podcast is for educational purposes only and it's not designed to diagnose or treat any disease. I hope this podcast impacted you as it did me. Please subscribe so that you can be notified when new episodes are released. There are some excellent shows coming up that you do not want to miss. If you're enjoying these podcasts, please take a moment to write a review. And please don't keep this information to yourself. Share them with your family and friends. You never know what piece of information that will transform their lives. For past episodes and powerful information on how to conquer Lime, go to integrativelimesolutions.com and an additional powerful resource, Limestream.com. For lime support and group discussions. Join Tanya on Facebook at Lime Conquerors mentoring Lime warriors if you'd like to know more about the cutting edge integrative of Lyme therapies my center offers, please visit thecarlfelcenter.com. Thank you for spending this time with us, and I hope to see you at our next episode of Integrative Lyme Solutions with Dr. Carlfell.

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